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We continue to learn about COVID-19 and amend our advice and practice accordingly. It remains important that everyone takes notice of the advice being given by government bodies. This page has been set up to act as a resource for everyone caring for children with kidney disease.

Most of the information is available through the internet and has been widely publicised. The focus is on trying to prevent the spread of infection, particularly to vulnerable groups and this is achieved by a number of simple measures:
  • Wash your hands often with soap and water for at least 20 seconds. If soap and water are not available, use an alcohol-based hand sanitizer with at least 60% alcohol.
  • Don't touch your eyes, nose, or mouth, especially with unwashed hands.
  • Avoid close contact with people who are showing symptoms of illness.
  • Clean and disinfect frequently touched objects and surfaces.
  • Cover your cough or sneezes with a tissue or sneeze into your elbow. Throw the tissue in the garbage and make sure to clean your hands afterwards.
  • Stay home when you are sick. If you suspect that you/your child may be suffering from infection with COVID-19 contact the Children's Kidney Centre prior to attending. It may also be appropriate to contact NHS 111 who will provide further advice but there are specific indications for calling this number which can be checked here. Currently the advice is only to contact this number if you "cannot cope" with the symptoms at home.
The evidence continues to show that children are less severely affected than adults. An obvious concern is with children on drugs that suppress the immune system and whether they may be more at risk. We have not seen serious problems in these patients and that is reflected in the advice we are giving about returning to school. There have been reports for and against the use of drugs that act upon the renin/angiotensin system, but again there is no clear evidence either way. The important message is that no changes are made to medications without consulting the doctor looking after the patient.
Shielding is now ending in Wales. Our national body , the BAPN, has produced updated advice (Aug 14). Clinically extremely vulnerable (previously shielded group) children and young people now include those:
  • With recent kidney transplants – first three months immediately after transplant 
  • On high level of immunosuppressive medication for active disease undergoing induction treatment - those who are currently receiving or completed treatment within 6 weeks of high dose steroids of 20 mg/day or above (or 30 mg/m2/day) AND cyclophosphamide or rituximab or other very powerful immunosuppression
If you have any queries about your or your child's management then please contact your consultant.

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