ACHD Resources

Patient Literature

• ACHD Network Leaflet
• Transition Leaflet

General Advice

• End of life support
• Financial issues
• Employment issues
• Lifestyle advice
• Pregnancy advice
• Contraception Advice
• Psychological support
• Transition

Guidelines

• ACHD standards NHS England 2016
• American Heart Association
• European Society of Cardiology
• National Institute of Clinical Excellence Guidelines including antibiotic prophylaxis for ACHD patients defects
• Royal College of Nursing guidelines – ACHD Clinical Nurse Specialist

Websites

• British Heart Foundation
• BHF Living with a Heart Condition
• Citizens advice
• Cruse bereavement support
• Downs heart group
• Finding an NHS Dentist
• Little Hearts Matter
• Pulmonary Hypertension Foundation
• Somerville Foundation
• The Heart line
• Youth at Heart
• Arrhythmia Alliance
• Cardiomyopathy Association
• Marfan Association
• Transplant Association