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Neuroendocrine Cancer

Cardiff and Vale University Health Board hosts the South Wales Neuroendocrine Tumour (NET) Service, providing world class care for people diagnosed with neuroendocrine cancer in South Wales, in partnership with Swansea Bay UHB and Velindre Cancer Centre.

Neuroendocrine Tumours in South Wales

The South Wales NET Service provides care for people living in the Cardiff and Vale, Aneurin Bevan, Swansea Bay, Cwm Taf Morgannwg, Hywel Dda and Powys Health Board areas, who are diagnosed with neuroendocrine cancer.

Neuroendocrine cancers are uncommon but increasingly prevalent cancers which are generally slow growing (NETs), although some can be aggressive (neuroendocrine carcinomas). Arising from different organs of the body, they most commonly originate in the gastrointestinal tract. They are diverse, complex and require individualised and expert care.

Patients are referred to the South Wales NET service with initial discussion at the South Wales multidisciplinary team meeting in Cardiff. Care provided includes precise diagnostic assessment, holistic symptom management including nutrition, blood test or biomarker monitoring, surveillance scans, clinical reviews and a variety of therapies or surgery, if appropriate.

The service is led by Dr Mohid Khan, Consultant Gastroenterologist and consists of a multidisciplinary team including clinical nurse specialists, dietitian, oncologists, gastroenterologists, endocrinologists, general and specialist surgeons, radiologists, pathologists, palliative care, and cardiologists. Due to the varied nature of NETs, patients can have ongoing care under different specialists in various hospitals depending on their needs, and communication with GPs.

After transformation in 2017, the service has won national awards including the UK Patient Experience Network award, been finalist for the British Medical Journal Cancer Team award, and has been recognised by the European Rare Cancer Network (EURACAN) as an expert centre. It is working towards accreditation as a European NET Society Centre of Excellence.

Patients can contact the service via the CNS helpline 029 2184 2807.

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