Children's Neuromuscular Physiotherapy

The specialist neuromuscular physiotherapy service is based at the Noah’s Ark Children’s Hospital for Wales.

A physiotherapist will be involved in the care and management of those patients with neuromuscular disorders across South East Wales.

The different types of neuromuscular disorders include: 

Duchenne Muscular Dystrophy  
Becker’s Muscular Dystrophy  
Limb Girdle Muscular Dystrophy  
Congenital Muscular Dystrophy – Bethlem, Ullric, Rigid Spine, Merosin deficient  
Facioscapulohumeral Muscular Dystrophy  
Myotonic Dystrophy 
Peripheral Neuropathies – Charcot-Marie Tooth / Hereditary Sensory Motor Neuropathy 
Congenital Myopathies – Nemaline, Myotubular, Central Core   
Congenital Myasthenic Syndrome 
Spinal Muscular Atrophy – Type I, Type II & Type III

Physiotherapy Treatments

Patients are normally reviewed alongside a paediatric neurologist and care advisor in a clinic to help support, advise and co-ordinate their local care. The specialist physiotherapist will review and clinically assess patients every 6-12 months to monitor the patients’ function and advise timely intervention with the wider multi-disciplinary team. The physiotherapist will also link with the patient and their family when they are having surgery.

Therapy involvement includes:  

Practical specialist advice for the patient, their family and school 
Exercise or stretching programmes  
Use of equipment such as walkers, standing frames, wheelchairs, orthotics

Useful websites

Contact details

Contact: 02921 841960  