Continuing Care is directed by the Welsh Government’s Children and Young People's Continuing Care Guidance (Jan 2020).
A continuing care package may be required when a child or a young person has long-term health needs arising from e.g. physical and learning disabilities, mental health needs, neurodevelopmental disorder and behaviours which may be considered challenging and cannot be met by existing universal or specialist services alone.
(See document in Resources of examples of these services).
Diagnosis of a particular disease or condition is not in itself a determinant of a need for continuing care.
The guidance covers young people up to their 18th birthday. Thereafter, the Continuing NHS Healthcare for Adults in Wales Framework for NHS Continuing Healthcare and NHS-funded Nursing Care and the supporting guidance and tools should be used.
There are significant differences between children and young people’s continuing care and NHS Continuing Healthcare for Adults. Although a child or young person may be in receipt of a package of Continuing Care, they may not be eligible for Continuing NHS Healthcare for Adults or NHS Funded Nursing Care once they turn 18.
If you think your child may be eligible for Children and Young People's Continuing Care support, please contact your social worker or any other health or social care professional involved in your child’s care for advice. If appropriate, they will make a referral to Cardiff & Vale University Health Board, Children and Young People’s Continuing Care Service.
Process to Assess Eligibility for Children and Young People's Continuing Care
The University Health Board (UHB) will aim to ensure that the whole process from referral to decision should not take longer than six weeks (as per Welsh Government Guidance); however, given the complexity and variety of needs which the UHB may be assessing, there is scope for flexibility.
Reviews of decisions made by Continuing Care
Parents/carers are encouraged to contact the Continuing Care manager as soon as possible if they are unhappy with any part of the Continuing Care process.
Whilst engagement and transparency is aimed to reduce the likelihood of complaints, disputes or appeals, there may be times when this occurs.
The University Health Board would like to make sure that you find it as easy as possible to request a review of a continuing care support eligibility decision. We will ensure that reviews are acted on fairly and resolved quickly.
The Team is based at:
Maes y Coed Road
Contact No : 02921 836544
Welsh Government Children and Young People's Continuing Care Guidance 2020 https://gov.wales/sites/default/files/publications/2020-03/the-children-and-young-peoples-continuing-care-guidance.pdf
Universal Services are services which are available to all children and young people no matter what their circumstances and include provision by health, education and voluntary services. Examples include:
Specialist services are specific services which generally have referral criteria and require both referral and regular review. Children and young people may move in and out of these services dependent on need. Examples include:
Noah's Ark Children's Hospital for Wales
Children's Services, Cardiff Council
Children's Services, Vale of Glamorgan